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Ghost Boy: The Miraculous Escape of a Misdiagnosed Boy Trapped Inside His Own Body, by Martin Pistorius
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They all thought he was gone. But he was alive and trapped inside his own body for ten years.
In January 1988 Martin Pistorius, aged twelve, fell inexplicably sick. First he lost his voice and stopped eating. Then he slept constantly and shunned human contact. Doctors were mystified. Within eighteen months he was mute and wheelchair-bound. Martin's parents were told an unknown degenerative disease left him with the mind of a baby and less than two years to live.
Martin was moved to care centers for severely disabled children. The stress and heartache shook his parents’ marriage and their family to the core. Their boy was gone. Or so they thought.
Ghost Boy is the heart-wrenching story of one boy’s return to life through the power of love and faith. In these pages, readers see a parent’s resilience, the consequences of misdiagnosis, abuse at the hands of cruel caretakers, and the unthinkable duration of Martin’s mental alertness betrayed by his lifeless body.
We also see a life reclaimed—a business created, a new love kindled—all from a wheelchair. Martin's emergence from his own darkness invites us to celebrate our own lives and fight for a better life for others.
- Sales Rank: #9261 in Books
- Brand: Martin Tools
- Published on: 2013-11-19
- Released on: 2013-11-19
- Original language: English
- Number of items: 1
- Dimensions: 8.39" h x .79" w x 5.59" l, .35 pounds
- Binding: Paperback
- 288 pages
- Inspiring book about a boy trapped in his own body
Most helpful customer reviews
323 of 343 people found the following review helpful.
A heart wrenching and beautiful story...
By Classical Homeschooling Mom
When Martin Pistorius was 12 years old, he came home from school with a sore throat. Over the next two years, his mind and body shut down, until he was left a quadriplegic who could not speak. Then, around the time he was 16, his mind started coming back to life. He tells his story in the book, Ghost Boy.
As Martin becomes more aware, he realizes that he has little to no control over his limbs and that he has no voice. All he can do is smile and move his eyes and head. He tries to use these signals to let everyone around him know that he is conscious and aware, but, as he states in the book, "They'd been told long ago that I was severely brain damaged, so when the young man with stick-like limbs, empty eyes, and drool running down his chin occasionally lifted his head, that's what they saw."
Martin spends the next decade in his unresponsive body, without a working voice. His days are spent at a day care facility while his parents work, but his father picks him up every evening to take him home to the family. His mind is active, and he spends much of his time developing elaborate fantasies to escape the horror of being trapped inside his own body; it's the only way he keeps from going mad.
Then a new caretaker enters his life and has a hunch that Martin is aware. She convinces others around her, and they take him to be evaluated for an alternative communication device. He passes the evaluation, and a new life is opened for him.
Martin speaks of his faith in God; that while he couldn't explain it, he knew that God was with him and he wasn't alone. His courage and strength is inspiring, as is the love of his father and mother and the woman he ends up marrying. I couldn't put the book down. Ghost Boy is an book of amazing perseverance through the most horrific trials one could imagine, and it's definitely worth your time to check out this true story.
Disclosure of Material Connection: I received this book free from the publisher through the BookSneeze.com® book review bloggers program. I was not required to write a positive review. The opinions I have expressed are my own. I am disclosing this in accordance with the Federal Trade Commission's 16 CFR, Part 255 [...] : "Guides Concerning the Use of Endorsements and Testimonials in Advertising."
118 of 128 people found the following review helpful.
Amazing Mental Strength and Courage
By Christy Welch
At first glance one would think this was a one-dimensional tale of a boy who had been silenced learning to find his voice once again. But this book is so much more. By the end, we weep when he weeps and leap for joy when he does. We feel the love he has for his family and friends, and feel as though we have taken the long journey from darkness into the light with him. This is an excellent, must read book. Martin has a beautiful voice, and I thank him for taking is along on his journey.
20 of 21 people found the following review helpful.
Life-changing Book
By OFF ROAD OKIE
So many books are so poorly written that reading them is drudgery for me. I'm an avid reader, but I find myself putting quite a few books back on the shelf after the first few chapters. Mr. Pastorius grabbed my attention on page one and kept it through the acknowledgements at the end. I still can't stop thinking about him. I've been an RN for many years. This book made me question my attitude toward many patients who've been in my care. I'm kind and compassionate, for sure, but could I have missed something with some of my most debilitated patients? For at least one of them was there a keen intellect, hidden by a silent, twisted body? This book makes me wonder.
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